For
years when Taylor and I have gone to visit my sister in NYC, we forego
Taylor wearing his J.C. Penney pajamas and opt for the T-shirt and sweats that
are always tucked in the guestroom chifferobe. Through four spinal
surgeries in ten years, Taylor has sported this Tee on each of our many trips
to Soho. My sister and I have always noted the slogan, but laughed it
off. "Whatever it takes for as long as it takes." Yeah.
Yeah. We nod and shrug and just sort of breathe in the fact of Taylor
being Taylor---special needs and all.
Taylor is 29 years old.
The whatever
it takes part
of this t-shirt saying---in real life, some days gets worn and threadbare and
all crumpled up. Some evenings the for as long as it takes part
seems endless. I don't want to cut up his food or brush his teeth or sit
and watch Bambi
again on
another Friday night.
But then comes morning. Thank
God. New light. New hope. New ways to see old beliefs. Come morning, the Tee shirt comes
off----but not so much the forever sentiment.
Sometimes a line from one of Mary Oliver's poems finds its resounding way into my head: “Tell me, what is it
that you plan to do with your one wild and precious life?"
And I pause. And then panic. I hear myself shouting, "But this is NOT enough! Is this a precious life I am living?" Let's face it, it is not a wild life at all. Or is it?
And I pause. And then panic. I hear myself shouting, "But this is NOT enough! Is this a precious life I am living?" Let's face it, it is not a wild life at all. Or is it?
Taylor's "imperfections" are so glaringly obvious (and
oftentimes offensive) to the outside world. So many of us are so constricted by our own compulsive need to be perfect that it becomes
uncomfortable to see him without that needling reminder of our very own flaws/weaknesses/holes---or what we see as such. It is just more comfortable to look away. I am you. I do this too.
We---most
of us---have such a hard time loving the parts of ourselves that just don't
measure up. It is almost not-bearable to accept and then love those
parts of ourselves that are IMperfect. You know this is hard. We
give lots of lip service to, "Nobody's perfect," and yet
we all spend our days moving Heaven and Earth trying to be. Trying to
be....needing to be...perfect. You know it's true. Be
honest.
And so.....and so.....the wild and precious part of our lives---of
my life-- must be to love this life----sinkholed, , scabby kneed, broken hearted,
non-liposuction-ed, Bambi- watching life.
Taylor's Tee shirt is a reminder for me---about my own life.
Any life lived deeply and real is what we all crave. Isn't that so?
Any life lived deeply and real is what we all crave. Isn't that so?
I will continue to see my journey with Taylor as deep and wild ----however long it takes me.
Whatever it takes... my lesson is to learn to embrace and kiss the precious-ness of this life ---the life that has my name on it.
Whatever it takes... my lesson is to learn to embrace and kiss the precious-ness of this life ---the life that has my name on it.
So glad to see you back. Your words and thoughts are so comforting. You are the brave and wonderful mother/person. You are an inspiration!
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